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FPWR was founded by parents of children with Prader-Willi syndrome (PWS). We know what you are experiencing! Please know that much progress in research is being made to help children with PWS.

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Rachel's Corner

  • FPWR Reaches $1 Million Mark in Funding PWS Research
  • Cicada Power
  • One Little Mouse....One Big Dream
  • 2008 FPWR Conference focused on Prader-Willi Syndrome Research & Advocacy
  • Working Together to Fund Prader-Willi Syndrome Research!
  • Prader-Willi Families Photo Gallery Launched!
  • FPWR Qualifies for the Combined Federal Campaign
  • The Importance of Advocacy
  • 2008 Fundraisers for FPWR
  • Message Boards and Hope



Home :: Calendar :: 2008 :: 2008

2008

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Advocate for FPWR!

Our Annual Conference and our first ever Hike the Hill events were a success, but there is much more to be done!.

We need you to act now to help us get enough co-sponosors for HR 1386 to bring it up for a VOTE! support FPWR's prader-willi advocacy efforts today!

Look here for an update on our conference!

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