The Foundation for Prader-Willi Research Awards Research Grant
SubTitle:
Study to investigate suspected links between Prader-Willi syndrome and Sensory Processing Disorder
Date:
December 14, 2006
Article:
The Foundation for Prader-Willi Research (FPWR) today announced that it will award $40,000 to the KID Foundation to support a research project investigating Sensory Processing Disorder in individuals with Prader-Willi syndrome (PWS).
The project is entitled "Evaluation of sensory processing in individuals with PWS" and was selected by FPWR's Scientific Board of Directors based on its scientific promise and relevance to PWS. The success of this effort could lead to the development of new therapeutic interventions to alleviate the behavioral and emotional problems associated with the syndrome.
Psychophysiologic research methods will be used to examine signs and symptoms of Sensory Processing Disorder in individuals with Prader-Willi syndrome (PWS). "Individuals with PWS have been described by parents as having difficulty with regulation of sensory stimuli from the body and the environment," said Lucy Jane Miller Ph.D., O.T.R, Executive Director of the KID Foundation, and the lead investigator for the project. "We suspect that some of the problems common in PWS, such as poor satiety recognition, decreased sensitivity to pain, tendency to self-injure and sleep issues may be related to Sensory Processing Disorder. Understanding whether or not individuals with PWS have a coexisting Sensory Processing Disorder should make interventions/treatment more effective by helping clinicians target neurological mechanisms of sensory processing for intervention."
"With every step toward more in-depth research and findings, we gain understanding that can lead to new therapeutic interventions, and we take another step toward the promise of our mission - an independent future for children with Prader-Willi syndrome," adds Theresa Strong, Ph.D., Director of FPWR's Grants Program.
About the Foundation for Prader-Willi Research
Founded in 2003, the mission of FPWR is to eliminate the challenges of PWS through the advancement of research. FPWR seeks to fund research that will ultimately give those with Prader-Willi syndrome the chance to have an independent future.
Prader-Willi syndrome (PWS) is a lifelong condition caused by a loss of active genetic material on chromosome 15. Hunger, metabolic, and behavioral characteristics of the disorder require individuals with PWS to have constant and lifelong supervision; there is no cure. While new treatments have improved the outlook for individuals with PWS, many of the syndrome's most difficult symptoms remain unaddressed.
For additional information on the Foundation for Prader-Willi Research or Prader-Willi syndrome, please visit www.fpwr.org
About KID Foundation
KID Foundation, formed in 1978, promotes research, education, and advocacy on behalf of those with Sensory Processing Disorder (SPD) and their families. SPD is a complex disorder of the brain that disrupts daily routines and activities and is often misdiagnosed as ADHD or other behavioral and medical conditions.
For more information on the KID foundation or Sensory Processing Disorder, please visit: www.KIDFoundation.org .
For additional information contact:
Rachel Tugon
Executive Director
502-384-8405
rachel.tugon@fpwr.org
The project is entitled "Evaluation of sensory processing in individuals with PWS" and was selected by FPWR's Scientific Board of Directors based on its scientific promise and relevance to PWS. The success of this effort could lead to the development of new therapeutic interventions to alleviate the behavioral and emotional problems associated with the syndrome.
Psychophysiologic research methods will be used to examine signs and symptoms of Sensory Processing Disorder in individuals with Prader-Willi syndrome (PWS). "Individuals with PWS have been described by parents as having difficulty with regulation of sensory stimuli from the body and the environment," said Lucy Jane Miller Ph.D., O.T.R, Executive Director of the KID Foundation, and the lead investigator for the project. "We suspect that some of the problems common in PWS, such as poor satiety recognition, decreased sensitivity to pain, tendency to self-injure and sleep issues may be related to Sensory Processing Disorder. Understanding whether or not individuals with PWS have a coexisting Sensory Processing Disorder should make interventions/treatment more effective by helping clinicians target neurological mechanisms of sensory processing for intervention."
"With every step toward more in-depth research and findings, we gain understanding that can lead to new therapeutic interventions, and we take another step toward the promise of our mission - an independent future for children with Prader-Willi syndrome," adds Theresa Strong, Ph.D., Director of FPWR's Grants Program.
About the Foundation for Prader-Willi Research
Founded in 2003, the mission of FPWR is to eliminate the challenges of PWS through the advancement of research. FPWR seeks to fund research that will ultimately give those with Prader-Willi syndrome the chance to have an independent future.
Prader-Willi syndrome (PWS) is a lifelong condition caused by a loss of active genetic material on chromosome 15. Hunger, metabolic, and behavioral characteristics of the disorder require individuals with PWS to have constant and lifelong supervision; there is no cure. While new treatments have improved the outlook for individuals with PWS, many of the syndrome's most difficult symptoms remain unaddressed.
For additional information on the Foundation for Prader-Willi Research or Prader-Willi syndrome, please visit www.fpwr.org
About KID Foundation
KID Foundation, formed in 1978, promotes research, education, and advocacy on behalf of those with Sensory Processing Disorder (SPD) and their families. SPD is a complex disorder of the brain that disrupts daily routines and activities and is often misdiagnosed as ADHD or other behavioral and medical conditions.
For more information on the KID foundation or Sensory Processing Disorder, please visit: www.KIDFoundation.org .
For additional information contact:
Rachel Tugon
Executive Director
502-384-8405
rachel.tugon@fpwr.org
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